
The 'Rett's of the Story
Saturday, July 12, 2014 -- It had been five days. We had gotten a call from our Neurologist the previous Monday. I had my iPhone on my shoulder as I fed Blake and Andi lunch. "I received the genetic test results," he said. "She did test positive for the MECP2 gene." And there it was. The answer to all my questions from the previous two and a half years. I took a deep breath, thinking to myself "My daughter has Rett Syndrome." I was trying it on for size. It fit, but I