It's D-Day (the 1 year anniversary)
Today is Blake's D-Day. That's what the Rett community calls it, "D-day" or Diagnosis Day. It's been 1 year.... On 7.7.14 our world was...
Fish Fry Update: That's love, man!
We are still very much on a high from the night of May 30, 2015. Team Blake came out in droves to help us raise money for Blake's Tobii,...
I intend it for good (Genesis 50:20)
It's been awhile since I've opened up our webpage to write a true "blog post". I tend to default to our Join Team Blake facebook page...
"Rett-Buster" -- Hope of a Treatment Drug (NNZ 2566)
Neuren’s NNZ 2566: Ok guys and girls, several are asking about the new drug trial that just completed late last year. I’ll give my take...
Thank you
I've been contemplating our next blog post, as I reflect on 2014 and look foward to 2015. I don't have a whole lot of time to sit down...
But, When I Fix My Eyes On Him
When I fix my eyes on Rett, I see a random mutation leaving devastation in its path. I see an attack. I see evil. I see weakness. I...
Day 7: A Week in the Life of Blake
Day 7 of "A Week In The Life of Blake" Sundays are the Lord's day, so we get together with our brothers and sisters for worship and Bible...
Day 6: A Week in the Life of Blake
Day 6 of "A Week In the Life Of Blake" Saturdays are the best kind of days. They are also chocolate chip pumpkin pancake days! (GFCF of...
Day 5: A Week in the Life of Blake
Day 5 of "A Week In The Life Of Blake" - Fridays are usually off days for us, but today we had a very exciting day, that involved...
Day 4: A Week in the Life of Blake
Day 4 of "A Week In The Life Of Blake"- Thursday is the last of Bs 3-day school week. A quick note about her school, we love it because...
